A Chemotherapy Services Plan for the Grampians Region has recently been completed. The following findings are based on consultations with service providers and consumers, data analysis, and a planning workshop:
Consumers value access to treatment locally and the opportunity to reduce the burden of travel. They also value the quality of interaction with staff and the quality of care provided/
Chemotherapy centres are well-distributed across the major population centres in the region, although over time it may be necessary to increase capacity in the rapidly-growing eastern part of the region. It would be difficult to establish any new centres with sufficient critical mass, and it is likely that growth in demand could be accommodated in the existing centres in the foreseeable future. It is noted however, that additional staffing and other resources would be needed to expand service delivery in any of the existing centres.
The region can improve coordination and standardisation mechanisms to ensure that all chemotherapy centres are working to the same standards and models of care
Referral and care pathways between primary care, regional chemotherapy centres and metropolitan highly specialised chemotherapy centres can be improved and there may be opportunities for standardisation. Some enablers to this are a regional approach to portability of patient records, shared care arrangements, and the agreement of telehealth protocols
Consumers would be better supported if there were better relationships between service providers across the region; between public-sector and private-sector providers; and between regional and metropolitan centres.
One of the key messages coming from people affected by cancer as well as health professionals is knowing about, and being able to access support services.
Supportive care services include
self-help and general support
information
psychological support
symptom control
social support
rehabilitation
spiritual support
palliative care
bereavement care
Information about supportive care can be hard to find. GICS will map the supportive care services across the Grampians Region and make this information accessible.
Contact for this project is Lea Marshall, GICS Cancer Service Improvement Coordinator
Health literacy in the Grampians and Small Town Cancer Planning
In 2015 GICS worked with Deakin University, Ballarat Health Services and the Department of Health and Human Services to complete the Ophelia Grampians Project: Optimising Health Literacy and Access to Cancer Care in the Grampians.
The project looked at health literacy and factors contributing to a higher incidence of cancer and cancer mortality in the Grampians region and discovered small towns face particular barriers to participation in care across the cancer journey. Subsequently in 2016-17 the project worked with two communities (Beaufort & Avoca) to develop and test a process to co-design strategies to help overcome these barriers. The processes sought to engage local GPs, cancer services, other services, local pharmacists, community groups and local businesses to develop and implement various interventions. A deliverable of this project was to also develop a framework that would help guide service development in other small towns across the region and potentially the state.
In 2017-18 the Ophelia project was extended to engage two Wimmera based towns (Nhill & Warracknabeal) to use the framework and develop interventions aimed at overcoming health literacy barriers for cancer patients. This part of the project is currently in development with the final report due Q3 2018.
Optimal care pathways for lung and colorectal cancers
Optimal Care Pathways (OCPs) aim to improve the cancer care experience for each patient by promoting and facilitating consistent and evidence-based care for each cancer type.
We know people affected by cancer, experience their cancer care across the whole health system, they need to receive services in an appropriate and coordinated manner.
This work includes analysis of current patterns of cancer care and consultation with our clinical leaders. We then identify variation in care and service improvements. Work has commenced on the colorectal cancer and lung cancer pathways.
My Cancer Care Record is a hand held folder to assist newly-diagnosed patients affected by cancer, to store and record their medical and health related information in one place. It helps people request information from their health care professionals and manage their care.
The record was initiated by the North Eastern Metropolitan Integrated Cancer Service Consumer Reference Group. They recognised the need for people affected by cancer to be:
more informed, actively involved and in control of their care
provided with more personally relevant information
better equipped to recall their health information and communicate with health care providers
Use of the folder promotes safety and improved continuity of a person's care.
One hundred copies of the first version of the folder were produced and piloted in Melbourne.
Following evaluation and improvements, the project has been extended to a larger pilot of 2000 folders for use over 12 months. GICS launched the folders in the Grampians region in December 2016.
The folder is
an A4 sized folder
for any person affected by any type of cancer
with
sections to help people organise and keep their important information
prompt pages to guide people on the type of information that's important to keep and record,
tips, information and questions for people to ask their health professionals.
GICS Consumer Advisory Group is leading the pilot of the folder in our region. The larger pilot will
extend the availability of the folder,
confirm that people affected by cancer need and value the folder
improve health professional awareness and use of the folder.
The FREE folders are available from healthcare professionals providing cancer related services.
For further information on this project contact Glenn Reeves, Cancer Service Improvement Officer
The podcasts listed below have interviews with local medical specialists and take you gently through what might be involved in the common treatment paths. We hope the podcasts below will be a helpful addition to the information patients receive from their treatment team.
What are the surgeons looking for when they're operating on your cancer? In this podcast you will meet surgeons Miss Caroline Baker and Mr David Deutscher.
What can you expect when you start chemotherapy? New treatments are more targeted with less side effects. In this podcast you will meet Dr Craig Carden and Oncology Nurses Elizabeth McEncroe and Heather McErvale.
What's involved in this high tech cancer treatment and what can you expect? In this podcast you will meet Dr Simone Reeves and radiation therapists Sharon Gibbs and Chris Hoyne.
Great support services are available for the Indigenous community. In this podcast you will meet Emma Leehane, Aboriginal Support Worker and practice nurses Anthony Harrison and Sandy Anderson.
To visit the Cancer Survivor website please click here
In 2013, lung cancer was the fourth most common new cancer, diagnosed in Victoria and was the leading cause of cancer death in both males and females.
The prognosis for those diagnosed with lung cancer is poor with a five year relative survival rate of 14% for males and 18% for females. In the majority of cases by the time lung cancer is diagnosed it is too late for curative treatment.
The diagnostic process is complex. Lung cancer patients may see up to four specialists and have multiple tests before treatment starts.
The approach to triage and coordination of the diagnostic pathway varies. This variation in timeliness of lung cancer care is a problem in Victoria.
GICS, together with our health service partners are participating in a redesign program to improve timeliness of lung cancer care in our region.
Objectives
Decrease delays from receipt of referral to first lung cancer specialist appointment
Decrease time from first specialist appointment to first staging test
Decrease time from receipt of referral to a diagnosis of lung cancer
All patients with a new diagnosis of lung cancer are discussed at a multidisciplinary team meeting
Contact for this project is Joanne Gell, Strategic Director
A Cancer Resource Practitioner is a local generalist nurse or allied health professional who is trained to offer supportive care to people, families and carers affected by cancer in their area.
They refer people with cancer to the right services as close to home as possible.
They also offer support, information and links to community and specialist cancer services.
Evaluation of the Cancer Resource Nurse/Practitioner role in health services in the Wimmera identified:
A high level of support and acceptance by patients, community members and health professionals
Streamlined referral process to ensure that referrals happen and are appropriate
Improved patient experience, including patient and carer/family satisfaction
Provision of a single and consistent point of contact for the patient with a cancer diagnosis and their carer/family
Reduced duplication of service delivery during the active treatment, recovery and survivorship phases
Patients travelled less distance for appointments, and saved money on travel costs
When Cancer Resource Practitioners have protected time to their role to undertake proactive identification, up to 90% of eligible cancer patients in their local area can be supported
Telehealth for Supportive Survivorship Care Project
Since discussions began in early 2016, GICS in partnership with Cancer Council Victoria (CCV) and HumeRICS are pleased to announce the Telehealth for Supportive Survivorship Care Project has now commenced.
The project aim is 'to develop, pilot and assess a telehealth model for the sustainable delivery of CCV's 'Wellness and Life After Cancer (WALAC) program across rural and regional sites in two Victorian Integrated Cancer Services'.
The project will provide access to a comprehensive survivorship assessment, education, exercise and wellness program for rural and regional cancer survivors and carers. Synchronous (real time) telehealth video conferencing will be used to enable the participants to remain as close to home as practicable while accessing the program. It will further innovate the program with tailored assessment, practical exercise and wellness sessions for survivors and carers as part of a pilot.
Centred in the Wimmera Southern Mallee region the main local project partners are Wimmera Southern Mallee Health Alliance member service, Stawell Regional Health and Wimmera Primary Care Partnership. Nursing and allied health professionals are key participants in the project.