Another Piece
Of the Jigsaw

My Cancer Care Record

My Cancer Care Record

My Cancer Care Record (My CCR) is a hand held folder, designed specifically for newly-diagnosed patients affected by cancer. It seeks to help patients store, record and organise their cancer and other related health information. 

The folder has been designed by consumers for consumers, and is being trialled and distributed within 13 service providers across the Grampians and North Eastern Melbourne regions - as part of a partnership between North Eastern Melbourne Integrated Cancer Service (NEMICS) and GICS. 400 folders are being distributed to patients within the Grampians region.

Cancer carer Ian Kemp, is delighted, "My Cancer Care Record empowers patients and their carers to make informed decisions about their treatment options. It is something that allows clinicians and their care teams to develop information specifically for their patients. Patients can take copies of their test results, medications can be recorded, visits can be documented, questions for their next visit to an oncologist can be prepared in advance." 

In January 2018 the mid-term report was released. Over 350 folders have already been handed to patients and 100 of them have provided feedback.

79 patients used the folder. Of these:
  • 89% found the folder useful for  storing information.
  • 79% found the folder useful for recording information.
  • 68% used the folder to remember important medical details and information.
21 patients didn't use the folder citing they were too unwell, have a different system or the folder was too bulky. 

Over the next few months patient interviews will continue and staff involved in the project will also be asked to provide feedback. 

The project is due for completion in August 2018.

View our news feature

For further information contact
Glenn Reeves
Cancer Service Improvement Officer (GICS)
(03) 5320 4041