A unique aspect of the folder is that it has been designed by consumers for consumers and will be trialed and distributed within 20 service providers across the Grampians and North Eastern Melbourne regions.
Cancer carer, Ian Kemp, is delighted, "My Cancer Care Record empowers patients and their carers to make informed decisions about their treatment options. It is something that allows clinicians and their care teams to develop information specifically for their patients. Patients can take copies of their test results, medications can be recorded, visits can be documented, questions for their next visit to an oncologist can be prepared in advance." Newly diagnosed cancer patients will be provided the resource.
The plan is to distribute 2,000 folders to cancer patients over a 6 month period as part of the pilot which will be evaluated by an independent consultant.